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Cystic Fibrosis

Discrimination claim as Clare children denied CF ‘wonder drug’

TWO Clare children with Cystic Fibrosis who have a rare genotype are being “discriminated against” due to their exclusion from availing of a transformative...

Clare mum of girl with CF vows to fight for life-changing Kaftrio

AN Ennis mother of a child with Cystic Fibrosis has vowed to continue to fight so her child and others can access ground-breaking treatment...

Covid doesn’t take a holiday when the sun comes out

AN EMOTIONAL appeal has been issued by the father of a young Shannon girl with Cystic Fibrosis, as the county’s rate of Covid-19 spiked...

Comment: Covid doesn’t take a holiday

WE REALLY need a break. The last four and a half months, since the pandemic was declared, have taken a huge toll. With the...

Major coup for CF charity

A LOCAL charity has landed a major coup by securing a rare iconic horse racing photograph for a forthcoming auction. World-renowned Irish horse-racing trainer Aidan...

Síle did not allow CF to define her

SÍLE Callinan lived a very full life and central to that was her love of football. The Cree girl sadly passed away on March...

Katie’s €120k gold standard CF legacy

Cystic Fibrosis (CF) patients can now look forward to “gold standard” testing equipment, previously only available at international specialist centres. All proceeds from the Truck...

Kilrush man seek access to new CF drug

THIRTY-two-year-old Robert Cook from Kilrush faces an every-day battle with cystic fibrosis. He lives in the West Clare town with his wife Sandra and...
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