The Clare Champion Clare news, sport, entertainment and local notes
THE Ennis family of a tiny tot diagnosed with a rare genetic condition are hoping that the Banner county will back fundraising efforts to help pay for treatment in the US. Olivia, known as ‘Livie’ Mulhern is just ten-months-old and has been diagnosed with Spinal Muscular Atrophy (SMA) – Type 1. Since her diagnosis parents Keith and Karen have launched a nationwide fundraising appeal to try and get Livie potentially lifesaving treatment with what has been described as “the most expensive drug in the world”. As part of the campaign Ennis’ Caoilfhionn Mulhern, Keith’s cousin, has organised an online ‘Clare Goes Pink for Livie’ fundraiser which has been supported by a number of local businesses. Caoilfhionn Mulhern explains that the fundraiser is due to be launched in the coming days and people will have a chance to win some fantastic prizes by making a donation to the appeal throughout the month. “The kind and generous businesses of Ennis have been …
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