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Kilrush man seek access to new CF drug

THIRTY-two-year-old Robert Cook from Kilrush faces an every-day battle with cystic fibrosis. He lives in the West Clare town with his wife Sandra and their two children and, on the surface, everything appears normal. “We are an ordinary family that do the day-to-day things all families do. But the difference between my family and most is that I was born with an inherited life-threatening genetic disease. Cystic fibrosis affects the lungs, pancreas and most other organs in the body. The lungs are affected the most. Cystic fibrosis is a thick green mucus, which is produced in the lungs, making it harder to breath and also is a breeding ground for lung infections and inflammation,” Robert explained. Every morning, Robert has to use a nebuliser before trying to get on with his day. “My daily routine before I have breakfast or even a cup of tea involves having a number of nebulisers to work through, to help my lungs and the …

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