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Tag Archives: lungs

Kilrush man seek access to new CF drug

THIRTY-two-year-old Robert Cook from Kilrush faces an every-day battle with cystic fibrosis. He lives in the West Clare town with his wife Sandra and their two children and, on the surface, everything appears normal. “We are an ordinary family that do the day-to-day things all families do. But the difference between my family and most is that I was born with an inherited life-threatening genetic disease. Cystic fibrosis affects the lungs, pancreas and most other organs in the body. The lungs are affected the most. Cystic fibrosis is a thick green mucus, which is produced in the lungs, making it harder to breath and also is a breeding ground for lung infections and inflammation,” Robert explained. Every morning, Robert has to use a nebuliser before trying to get on with his day. “My daily routine before I have breakfast or even a cup of tea involves having a number of nebulisers to work through, to help my lungs and the …

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Family’s gift of life lauded

AN Ennis family has been lauded by a local kidney recipient for donating organs from their 19-year-old son, who died unexpectedly 10 years ago. In an interview with The Clare Champion to promote Organ Donor Awareness Week, which continues until April 4, Mary Murphy, Considine Road, explained that her youngest son, Garry died as a result of heart failure caused by a seizure in 2005. Mary says that she didn’t really think about organ donation at the time because she didn’t think anything was going to happen to Garry. “The family was called into a room in University Hospital, Limerick and were asked would we donate his organs and without even thinking, I said ‘yes’. Even though Garry was on life support, it was as if I was on the outside looking in. I brought in his clothes for going home. It hadn’t hit home. “He got a seizure on a Saturday morning and the life-support machine was turned off the …

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Organ donors giving the gift of life

MEMBERS and volunteers from the Clare Branch of the Irish Kidney Association (IKA) are promotion donor cards and fundraising at locations throughout the county this week. They focused on Ennis, Newmarket-on-Fergus and Tulla over the weekend  and will head to Killaloe on this Thursday and Kilrush and Shannon on Saturday. The focus of the campaign is to promote awareness of the need for organ donation during National Organ Donor Awareness Week. The week was officially launched at an information meeting in the Temple Gate Hotel, Ennis last week. The speakers included Professor Austin Stack, consultant nephrologist at University Hospital, Limerick (UHL); Libby Sweeney, pharmacist at UHL and Mike Kelly, coordinator of counselling services at Donor House. Currently, there are 36 Clare patients receiving life-saving haemodialysis treatment at the dialysis unit in UHL, the Fresenius unit at Riverside Park and Unit 7, Merlin Park. There are also seven Clare patients on the home dialysis programme and on the more recent treatment …

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