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Tag Archives: fundraising

Pioneering surgery hope for Antoni

A CLARECASTLE family is desperately trying to give their six-year-old son, born with a rare condition, a very special gift. Little Antoni Barczak was essentially born without an outer ear on his right side. He has been diagnosed with right ear microtia, a condition that affects one in every 100,000 newborns. His family is now trying to raise €30,000 to bring him to America for reconstructive surgery, which they believe will help change his life for the better. According to his father, Val, Antoni has started to notice that he is different from the other children in his school. The condition also affects his hearing, with speech sounding like a whisper to him. Antoni and his twin brother, Franek, were born premature in their 31st week. Mother Tania said, “We didn’t know anything was wrong. Everything was fine until my 30th week, when we found out that they had twin to twin transfer syndrome. The scans were all perfect, we …

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Motorcyclist fatally injured in Kilrush crash

A Dublin man who was taking part in a motorbike rally which he helped  organize for Down Syndrome Ireland died in a motorcycle crash near Kilrush yesterday. Aidan Lynam, a 44 year-old father of three from Lucan,  had helped collect more than a €1million for the charity. The fatal crash occurred outside Kilkee on the Kilrush Road at approximately 11.45am. Mr Lynam was airlifted to University Hospital Limerick where he was later pronounced dead. The driver of the car was uninjured. The stretch of road was closed to facilitate an examination by Garda Forensic Collision Investigators. Witnesses are asked to contact Kilrush Garda Station on 065- 9080550.

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Rocco a ‘godsend’ for Stephen

A North Clare special needs child is the first in the county to receive an assistance dog from a new national charity. Karen Murtagh, who lives in Ennistymon, has described the arrival of Rocco, a nine-month-old black Labradoodle as a “godsend” for her son, Stephen (10), who has Autism Spectrum Disorder (ASD). Stephen is one of the lucky children who are benefiting from 48 service dogs provided by My Canine Companion, which trains dogs to assist children and young adults living with ASD. It is the only charity that will give an assistance dog to a child over 10 years of age, as other organisations like to pair an animal with a younger child. Each dog costs the charity over €10,000 to train and Karen will have to raise half of this figure over the coming years. Businesses in Lahinch, where she was born on Main Street, are already rallying around this worthy cause. The 19th Bar in Lahinch has …

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Lauren and her classmates

Lauren and class-mates show generous heart for Crumlin

Born with a heart condition, a young Ballyea woman has spent the past 16 years travelling to Crumlin Children’s Hospital. This year, after having what she hopes will be her final heart surgery, Lauren Coote decided to raise money for the heart centre at the hospital, in recognition of the care she received there. Lauren has just completed her Junior Certificate at Coláiste Muire in Ennis. Before her exams, she and her classmates in C3 organised a no-uniform day and raised €1,335, which she delivered at a recent check-up in the hospital. “We held the no-uniform day in the last week before school ended. We involved the school because we wanted to raise as much money as possible. I brought the idea to the principal and then all the class helped out, counting the money and letting people know about it,” Lauren outlined. “The reason we did this is because I have been going to Crumlin all my life since …

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Rape Crisis Midwest in Clare Announces Temporary Closure

One in four people have been subjected to some form of sexual violence, according to Rape Crisis Midwest – a service which offers support and help to the one in four affected by sexual violence in County Clare. However, due to the declining financial status of the charity organisation, which is used by 12 people every week in Clare, they will close their Ennis based service temporarily for the month of  September. Rape Crisis Midwest has had to make the difficult decision to temporarily close both its Clare and Tipperary services for the month of September as the charity faces a shortfall estimated to be in the region of €120,000. All services provided at the Tracklands Business Park, on Clonroadmore in Ennis will be cut for the month of September and will be reassessed based on whether the service can make up the shortfall through public support in the interim. A skeletal service will remain in Limerick for the month …

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Frankie and Siobhan Lundy with their daughters Ava, Emily and Olivia.

Positivity in the face of uncertainty

By Jessica Quinn “I could go away and crawl into a corner and let it roll me over, or I can stand up and say no way, Jose”. These are the inspirational words of Frankie Lundy who, two and a half years ago, was diagnosed with the rare Huntington’s Disease. Speaking to The Clare Champion recently, Frankie and his wife Siobhan talked openly and honestly about the affect the condition has had on their family and their efforts to raise awareness. Originally from Belfast, 51-year-old Frankie has lived in Ennis for over a decade, having previously lived in Shannon. A former musician, the Lundy name is widely known in music circles with Frankie playing drums for a number of well-known bands. Huntington’s Disease is a hereditary disorder that causes progressive deterioration of the physical, cognitive and emotional self. Most people with HD develop symptoms between the ages of 30 and 50, with symptoms varying from person to person. A self …

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