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Coping with narcolepsy

IMAGINE knowing that you, or your child, could just suddenly fall asleep at any time. Think of the implications for careers, education or something as simple as travelling on public transport. That’s the reality of narcolepsy. Think about how difficult every-day life would be if you were a young person with narcolepsy in terms of study, exams, work, using public transport, finding accommodation and socialising. It’s a reality for approximately 100 young Irish people today because they developed narcolepsy after receiving the 2009/2010 H1N1 Swine Flu vaccine Pandemrix (manufactured by GlaxoSmithKline) at the behest of Irish State. Sound (Sufferers of Unique Narcolepsy Disorder) was set up by parents of children who developed narcolepsy. The support group and registered charity continues to be run by a small voluntary team of parents of children with narcolepsy and young adult narcolepsy sufferers. Sound provides support for 87 Irish families affected by the vaccine and wants the State to provide a pathway for the …

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