A public campaign is underway inviting patients, carers and families to share stories about their experiences of care to help improve services for people with non-curable and serious illnesses.
During the month of April, across the country, the Let’s Talk About Care campaign is calling on people to share their experiences by completing an open survey at www.caresurvey.org.
The survey is being led by All Ireland Institute of Hospice and Palliative Care (AIIHPC) and open to people (or their carers or families on their behalf) with serious conditions such as advanced respiratory disease, chronic kidney disease, motor neuron disease, cancer, heart failure, dementia and so on.
AIIHPC director, Paddie Blaney said, “For people with conditions that cannot be cured¨, the goal of care is the best possible quality of life. They may need help with pain and other symptoms but also practical, social, emotional and spiritual support and they may need that care for weeks, months and
years up to the end of life.”